Shop Away, Newbie Tubie Style

Below are NewbieTubie Package shopping lists and links to our wishlists for items we are in need of right now! This list is current and we keep our wishlists updated based on supply!

We are so thankful for each and every donation, we truly cannot do this without your support and generosity! We are in need of donor support for products as well as for shipping fees to keep going, so share our posts to help us reach more donors so that our loyal followers and community don’t have to keep funding it 😉

Thank you in advance and please don’t hesitate to reach out with questions or suggestions on fundraising or other possibilities ✨

ETSY: https://www.etsy.com/people/rsb4fc/favorites/newbie-tubies-wish-list?page=3

AMAZON:   MAIN LIST: https://www.amazon.com/hz/wishlist/ls/1J7LHVRD4V3A6?ref_=wl_share

BUDDIES NEEDED: Purchase A Buddy to sponsor a button buddy! Add a note so we know who it is from and we will send you photos when we create the Button Buddy and send it out! 

https://www.amazon.com/hz/wishlist/ls/W9IXBH9TFV4A?ref_=wl_share

Sponsor a Book! https://www.amazon.com/hz/wishlist/ls/A2HGIE93P9BL?ref_=wl_share

PAY PAL: positivelyrachel101@gmail.com // VENMO positivelyrachel/positivelyrachel101@gmail.com

SHOPPING LIST: ITEMS WE NEED: 

MINI GERM X – you can get these for 97C at Walmart as well as at any pharmacy or the dollar store! It is SO important that our recipeints have these while they heal, especially since they are having surgery during COVID19. So when you shop for yourself in person, for pickup, or online, add in a few for Newbie Tubies! 

MINI Q-TIP Containers! We need q-tips! The travel sized ones are PERFECT for our care kits! You can find them RIGHT BESIDE the MINI GERM-X at walmart for 97C or at the dollar store for $1! What a steal! We put these in EVERY PACKAGE we can! 

BARRIER CREAMS – We need barrier creams (similar to diaper creams!) for our newbies to use as their stomas (tube sites) heal! 3x antibacterial ointment and calmoseptine also work, if you find them in small tubes we can send those out! Off brands accepted!

CHAPSTICK – We are out of chapstick and it is almost that season again! Any type of chapstick is accepted, so send us your favorite kind to share with a newbie!

FACE MASKS/Self Pampering- (Skin care masks, not surgical/COVID masks, tho we do need those , too!) We love including care items as well as spa/pamering items like face masks & epsom soaks and nail kits to let people do at home pampering post op! A little self care is always comforting and makes you feel nice and fresh, so send us some of your favorite face masks and soaks or any other self pampering products so we can send those out!

FACE MASKS – AGAIN? We do love including surgical masks, so if you make cute COVID masks, send them our way!

Baby Bath & More – We need baby bath supplies as well! Fun items like bath paints are always great but also sponges, towels, bubble bath, and bath toys are welcome! We also use baby socks, chewies, and all care items.

Onesies – Solid colored onesies – if you have any of these on hand or see them on sale, send them our way!

FUZZY SOCKS – who doesn’t love these? 

TUBIE ITEMS- We always need tubie pads, clips, tracheostomy pads, and more! Our Etsy list is the place to go!

BOOKS – What are some of your favorite childhood books? We collect books for children ages 0-10, so donate any lightly used or new books that we can include in packages! We put at least one book in each child’s package; whenever possible, we include a book written about tubies! We have a “Sponsor a Tubie Book” list on amazon that has books written specifically for/about tubies! That is linked here!

Like buddies, the books on this list can be such fabulous tools for kids to learn about feeding tubes and alternative feeding! They help explain the “why” and “how” in a non-scary way that helps kids feel a lot more comfortable with the tubes, both tubie and kids who are siblings or children of a tubie, classmates, friends, etc. 

Both toys and books are a way kids learn about the world and normalize, so reading about feeding tubes with young kids can make them into something they are aware of, have a basic understanding of, and don’t consider to be icky or scary or weird. How cool is that? Kids are truly incredible in how open they are to learning and how ready they are to accept new, different things if we make them open and available to them. 

BUTTON BUDDIES – We are always looking for stuffed animals to use to create our Button Buddies! We do accept lightly used bears if they are in great shape and haven’t been kept in bed with you or chewed on by babies or dogs, etc. We also have a wishlist on Amazon that has lots of fabulous options that can be sent directly to us! 

Button buddies are a tubie’s best friend. They are a learning tool for newbies and fabulous for showing children how to care for a tube, to show they are not scary or bad, they are just another way to eat! We encourage parents with young tubies to use button buddies as a tool to normalize the feeding tube for the tubie as well as their friends, siblings, and classmates. Books and buddies are a huge gift to a newbie, they truly bring light to their eyes and joy to their faces. 

Buddies are also a comfort when you are admitted, traveling long distances to see doctors, and having infusions or shots or any type of treatment! No matter the age, having a buddy can bring some comfort, and any amount of comfort or joy you can bring into such a serious and scary situation is a huge deal.

You now have the opportunity to sponsor a buddy! Simply purchase a stuffed animal from our wishlist on amazon (or anywhere else) and it will be sent straight to us where we will create the button buddy! Make sure to add in a note with your name and contact information so we can send you a photo of the buddy you sponsored and who it went to! 

We include Button Buddies in as many packages as possible, and thanks to both AMT Medical Supply & ESutures we are able to create & send these to so many more tubies! We couldn’t do that without their generosity. 

Thank you to everyone who reads, shares, and donates to our efforts. You are all making a difference for someone who’s is in need of happy mail and love, so you can feel good about that. Sometimes giving feels even better than getting, and I can guarantee that this is one of those times 🙂

Strength for All; A NTCP Shirt Fundraiser

In October of 2017 I had my GJtube surgically changed into two separate tubes – a jtube and a gtube – after months of tube trouble due to my severe dysmotility throughout my GI tract. This surgery was insanely painful due to complications brought on due to my EDS, so my recovery was long painful, and during that time I relied on my parents for EVERYTHING. I couldn’t sit up in bed on my own, couldn’t walk, shower, brush my hair, or seemingly do anything else because all of these movements require abdominal contractions/tension and every time that happened I was in excruciating pain.

It was during that time that I began thinking about how lucky I was to have my 24/7 support team who were there for me always, no matter what, no complaining, and I just couldn’t bear the thought of anyone going through this alone, so I decided to be there for every tubie I could. Chronic illnesses are one of those “find out who your real friends are” situations and it can be brutal and shocking seeing who it is who puts the effort in, my goal is to step up and be that person when I can, but also to encourage others to do the same; so two years and lots of work later, over 300 packages have been sent out to first time tubies. 

To celebrate this milestone we’ve started a shirt fundraiser to raise money to contribute to Newbie Tubie Care Packages! 

Living with chronic illnesses or other conditions that cause one to be unable to eat enough to sustain themselves on their own and cause the need for a feeding tube is incredibly challenging, and that’s a massive understatement. Imagine life without your favorite foods , without the ability to go out for ice cream or coffee or a drink with friends, not sitting around the table and eating thanksgiving with your loved ones, having to come up with options not involving food for social gatherings or first dates, and explaining to people why you aren’t eating or what that little knobby thing on your tummy is.

Feeding tubes require incredible strength and self awareness, they are life changing, but they are nothing to be ashamed of, they are a gift that gives life back to more people than you would ever imagine – young and old, boys and girls, and due to so many different causes or conditions, feeding tubes are so much more than just a life sustaining piece of plastic, so join us in spreading awareness and celebrating year 2 of Newbie Tubies as well as the gift that so many of us are given through feeding tubes – the gift of nutrition, energy, and a life we may not have had without them.

Whether you’re a tubie or not, purchasing a shirt shows your support and love for tubies and contributes to our care package program that sends packages (free of cost) to first time tubies. No matter where your strength comes from, these shirts represent that strength.

We run on donations and these shirts are super cute, so it’s a win-win! You do not have to be a tubie to be Tubie Strong!  Purchase a shirt for yourself and wear it proudly, no shame, just strength and power in your self and appreciation for the gifts we often take for granted.

Thank you so much <3

*Link below! Currently open until Nov. 21st.*

**SHOP HERE!**

you can also donate to PayPal @ rajinone@aol.com or check out or wishlists on Amazon or Etsy!

Love & Gratitude,

Positively Rachel