My Holiday Inspiration

I was listening to a Christmas CD tonight while I was painting and I was struck by the lyrics of one song in particular. I don’t know what everyone else thinks or feels about this season (and really any time of the year), but I’m a strong believer in the power of love and this song just really hit home for me.

The song said, “The story of hope and joy and peace…. let anger and fear and hate disappear and let there be love that lasts through the year.” (Alan Jackson- Let it be Christmas)

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Christmas Paintings!

Maybe it’s just because I’m exhausted and emotional from post surgical pain, medications/side effects, and insomnia, but this just made me stop what I was doing and really ponder and appreciate. Christmas is my favorite time of the year, but it’s not always a picture perfect holiday. We’ve dealt with years of illness, our fair share of (extended) family drama and arguments, tears on Christmas Eve, and anything else a “normal” family (hah, normal?) may see. However, in the end, we come together and we celebrate love and we spend time together and that’s what matters.

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The day after hearing that song, my good friend posted this amazing post on Facebook about love and family and again I was just struck with how much I related to that post and how again the power of love was shining through and someone else was recognizing and sharing that. I’d like to share that post with you…

” People always ask me how I stay so strong and how I’m so positive. Well, I’m not always strong and sometimes I feel like nothing will ever be okay, but I’ll let you in on a little secret. I was born into a family of warriors. After each punch life throws at us, we help each other up and we battle it together. No one fights alone and every one of us has scars of courage to prove it. At the end of the day, our love outshines any cloud of darkness. Together we can do anything through love.”
-Carolanne Monteleone

My family and I (parents and sisters) have been through hell and back just trying to stay on our feet through each “punch”, each trial we’ve been through, but the key to that is that WE go through each trial. Together. I am never alone through this long and challenging journey I am on because I know my family will never leave my side. Sadly, I am one of the lucky ones; I’ve seen first hand that not everyone, not even every family member, works that way.

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Decorated IV pole

Love is one of the most powerful emotions a person can experience. It can make you do crazy things, but it also brings about the best things in life. To love unconditionally and to be loved unconditionally is one of the best gifts you could ask for, and you rarely find that outside of your family (until you get really lucky 🙂 ).

Families should always share unconditional love– parents, spouses, siblings, grandparents, cousins, everyone included! Life is short. Life is full of ups and downs, arguments, differing opinions, heart break, annoyances, cold shoulders, and regrettable moments, but it’s also full of laughter, hugs, big smiles, great photographable moments, tons of joy, milestone moments, and most importantly… LOVE. So why do we waste so much time being angry? Holding grudges? Arguing over the past? We should be together celebrating, making memories, being joyful, sharing happiness and love.

This Christmas season I urge you to love unconditionally. Find forgiveness in your heart for those who have wronged you. Don’t ever take being treated for less than you deserve, but always remember that life is short and relationships with loved ones are precious. Let only positive thoughts into your mind and share those positive thoughts with others; always try to focus on the good, there is so much of it.

Spread love. Laugh endlessly. Find your happy and share it with your loved ones.

Happy Holidays!

The Significance of the Holiday Spirit; Spreading Love and Generosity

The holidays are my favorite time of the year. Once we pass Halloween and get close to Thanksgiving I know it’s (basically) an acceptable time to bring out all of my Christmas leggings, shirts, tubie pads, and of course the hippo who sings Christmas carols.

It’s kind of funny that this is my favorite time of the year since health wise it’s often the most challenging. I was diagnosed with gastroparesis in December of 2013; this will be my 5th year not eating a Thanksgiving meal, my 5th year without any pie or turkey, my 5th year not having any snacks or candy in my stocking, my 5th year not eating our traditional Christmas brunch, and my 5th year seriously struggling with my health during the holidays.

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Our favorite gifts… donut pillows and blankies 🙂

But really, these holidays don’t have to revolve around food. I have much more to be thankful for even without eating. I have so much beauty and love in my life and I’ve found new passions and hobbies that not only bring me joy but help distract me from pain, hunger, and other symptoms as well as from the thoughts of all that my illnesses have taken or changed in my life; I prefer to focus on all that I’ve gained, all of the positive changes, and all of the things I’ve learned about myself and about life just from becoming so sick and being homebound.

The Christmas spirit is such a beautiful thing. I’m not even sure I loved it so much before being sick, but now I appreciate it endlessly. Even for people who don’t really like Christmas or don’t celebrate it, there’s just a contagious feeling of joy, love, generosity, and comradery that we lack during the rest of the year.

As I’ve gotten older it’s become less about gifts and food (obviously #tubiereality) and more about sharing that joy and love with others as well as finding joy in giving.

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Baxter stayed up for Santa 😉

I love finding special gifts for my loved ones but also finding ways to share with the less fortunate; sometimes this means giving money or gifts, sometimes meals or just festive cookies, or othertimes it is giving other gifts that I can make like simple cards with meaningful words, a painting, or a simple necklace or bracelet that I have made. In the past we have given gifts and food to local families or children who were in need, sent boxes of gifts to children in different areas or countries, and this year I’ve started a new nonprofit called “Newbie Tubies” for other individuals who are getting feeding tubes for the first time! I’m setting up both an online wish list and will eventually be asking for monetary donations for extra supplies and shipping, but I’m also selling my paintings in hopes to raise money to send out these packages to help ease the transition for new tubies.

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Breaking out the festive tubie pads 🙂

The holidays are a beautiful and special time. It’s filled with love and joy, gatherings with friends and family, and the gift of giving. If you’re able to give, I suggest finding a way to give to someone who is in need, whether that be an individual person or a family who could use some Christmas cheer, volunteering at the food bank or soup kitchen, or donating to an organization of your choice that is donating to those in need; ‘tis the season of giving and spreading the holiday spirit. <3

Lots of love and an early wish of happy holidays! 🙂