For me, Thanksgiving is a little different since it obviously won’t revolve around food. I rely on my tube feeds and IV fluids for nutrition and hydration, and food isn’t a big priority for me. Because of this, I get to focus more on the real meaning of Thanksgiving: it is a celebratory day at the end of harvest where we express gratitude for all that we have.
I may not have had a harvest, but I have so much to be thankful for. Some people are surprised at how often I post about my gratitude and positivity towards life, but my illnesses have only made me more thankful for all that I have. So, while I won’t be saying thanks for a good meal or a nice glass of wine this Thanksgiving, here are a few things I am thankful for…
- My family
Okay, the first one is a little cliché, but for me, my family is more than just a family. At 20 years old I still live at home full-time with my parents and younger sister. My parents are my caregivers; they take me to appointments, make my tube feeds, pick up medications, and on my worst days help me in and out of bed, mom washes/brushes my hair, and they do anything else I may need. My parents and sister are also my best friends. I spend almost every day at home and they are pretty much the only people I see (and Sam– Laura’s boyfriend 🙂 ); they work hard to find things to do to try to entertain me and keep me occupied. Without my family, I wouldn’t be here today.
- My dogs
My rescue pup, Baxter, is my #1 form of therapy. He is better than any medication I’ve tried. Being home alone a lot is made so much easier by having dogs. Baxter is always by my side and knows when I’m having a bad day. He loves to cuddle up with me (and my heating pad) when I need a nap, sit in the sun, take a walk, or just lay in bed and watch some Netflix. He is a fabulous buddy to have around 🙂
Almost five years ago I was blessed enough to be assigned Tyler as my challenger baseball buddy. Every day I am thankful that he came into my life and that he continues to make it brighter every time I see him! It has been such a gift to see him grow and to have him by my side to shed some light on things throughout this journey!
I’m thankful for my health insurance. Even though it can be a pain in my butt when it doesn’t cover something or fights me on a medication/treatment, I will always be thankful that I have it. Some people are not so lucky.
- Living in a beautiful place
We recently moved into the woods in Union Springs. We are surrounded by trees and live a short drive/walk from a reservoir and several ponds and creeks. It is so peaceful and beautiful up here and we live in an area with such gorgeous mountains, farms, and parks. I love having such beautiful sites, it is such a gift to be able to go for a drive and see such incredible views so close to home.
- Doctors and Nurses
I can’t forget all of my great doctors, nurses, and pharmacists. They work so hard for me and for all of their other patients. I have amazing nurses who work around the clock helping me communicate with the doctors, schedule appointments, and think through symptoms and minor medical dilemmas. My doctors work so hard with patients whose cases are so complex. And my pharmacists help keep track of my meds, interactions, and refills. I literally wouldn’t be here today if it weren’t for them.
I’m always cold. September-April you can count on me being bundled up and under a heating pad. I am thankful for my sweaters, hats, heating pads, heated blankets, fuzzy socks, and mostly for my comfy bed! Also, of course, for my home and heat; not everyone is so lucky, so take time to be thankful for warmth this year!
I’m also very thankful to have a supportive and loving community. My community here at home has shown my family and me so much support throughout my journey with chronic illnesses and it has made such a difference for us. Knowing you have such a big support team is such a gift, and not everyone has that.
I’ve also found a community of people living with illnesses just like mine through online support networks. These sites have let me connect with people from all over the world who are going through the same thing that I am. I’ve made great friends who really understand what I am facing and I’m even lucky enough to hang out with some of them in person!
My list could go on, but there’s a taste of what I’m thankful for! I also think this year it is important to remember that many of our Native Americans are facing brutal conditions in North Dakota while they fight for their right for clean water and for their sacred lands at Standing Rock. Thanksgiving is a day that celebrates a peaceful meal between the settlers and the Native Americans, yet this year there is no peace at Standing Rock.
There are many things we often take for granted, and today is a day to be reminded of how much gratitude we should have for all of these things. I hope everyone has a great Thanksgiving and can find lots to be thankful for!